Because
we are blessed with SO many wonderful people - family, friends, and strangers -
praying for us and encouraging us, and since I've always kinda wanted to blog
anyway...I thought now is my time! First of all, I want to remember this
journey, share the journey and it's highs and lows, and be able to tell the
story to the babies one day. Also, if people are praying, I would love for them
to know what to pray for because I know prayer is what will get us through,
nomatter what the outcome. This first blog is going to be kind of loonngg and
boring so I can explain what so many people have been asking...just what are
MoMo twins?
Before I get all technical on
you, I will share our pregnancy story from the beginning :) If you don't care
and just want to hear about what momo's are and get back to your facebook
stalking, then skip over the blue and start back up where it turns pink again.
We were not only NOT trying to get pregnant, we
were actively trying not to!!! One day I was feeling kind of nauseous and tired
and just not right. My friend had just had a baby that day, a baby that they
were told they would never have, a "miracle" baby so to speak. I thought it
might be a sign so I took one of the pregnancy tests I keep stocked in my
bathroom cabinet. (I may or may not be known to purchase lots of dollar store
pregnancy tests at a time and taking them monthly even when I know I am not
pregnant...and usually I am not, but hey, it's a dollar right?!) It was WAY to
early for the test to even turn positive. We are talking 50% of women get a
positive result 5 days early. This was like 10 days early, but I saw a faint
line appear. No. No way. Is it really there? No it's my eyes. No it's there.
Take another one. Ok, that one isn't positive. Wait. Yes, yes it is. Call
friend. Say it out loud. Send friend picture of test. Friend says its positive.
It's positive, all three are positive. Faint, but positive. I tell friend I bet
it's twins, I know it's twins, how else would I have gotten a positive result
this early? True, I said that, and repeatedly texted it to her too! So I am
shaking and processing this, tell Emma because I have to tell someone, and she
is so excited! I waited until James came home to tell him and he was really
excited too, had a man tear in his eye but don't tell him I told you. That night
I googled dollar store pregnancy tests and saw there were some that gave false
positives. Aha! That must be it, because James and I both had health class, and
my mom gave me "the talk". I know where babies come from. But we both had NO
idea when or how this occurred! We were TRYING NOT TO! I guess nothing stands in
the way of God's will! Without getting too personal, don't think
that "protection" and verrry careful calendar counting are 100% effective - you
might end up pregnant with twins :)
So, while I wasn't quite
ready for #3, I knew it was meant to be, and was thankful that we are fertile
myrtles, because I have a lot of friends struggling and spending oodles of cash
to try and get pregnant. I can't imagine, and I know how lucky I am to seemingly
get pregnant by holding my husbands hand. My sweet 4 year old Emma asking to
kiss my belly and grinning from ear to ear is enough to get you pretty pumped.
I was sick
with both Emma and Abigail when I was pregnant. I wasn't sick with my first baby
that I miscarried. So when the nausea hit hard, I at least knew this was a
healthy baby (but it has been no fun trying to take care of a house and my
daughters while I feel so yuck). I never vomited or lost weight like this with
the girls though, so again it crossed my mind I might be carrying twins. When I
went to the dr. for my first exam, she said that I was measuring larger than my
due date and that I might be further then I think. Then, I went downstairs for
my ultrasound - the only ultrasound I ever went to without James! When she took
me back she said jokingly, "so is it one or two in there?!" because a week
earlier I told her I swore I felt movement ALREADY. Laid back, as soon as it
popped up on the screen, I saw two heads, and the nurse said, "Um. You have
twins." Then we were quiet for a little and I said, "yep, that's what that looks
like to me!" The rest is a blur, I was so shocked and scared that I couldn't
even focus on the next few minutes of what was on the screen. I honestly wasn't
ready for ONE more and never thought I would have 4 kids! Maybe a foster kid one
day, but never four of my own. We weren't going to try for almost another year,
and I still have a baby! Abby is my baby, she is in diapers, she sleeps in a
crib, she needs me to hold her! Beyond that, the dr. told me they are high risk
because they are in the same sacs. I would need a C-section. I ran out to the
car and dialed James with shaking hands and told him and listened to him
giggle....what else do you do but giggle?!
As I drove I took glimpses at the
ultrasound picture and it didn't take long for me to fall in love with them and
the peace that passes understanding to overcome me, and while I was still
quivering, I just knew it was to be. I always have said I thought I would have
twins. I went to show my parents the picture at their jobs, and a woman at my
mom's work looked at me and said, "God has found favor in you". I really needed
to hear that. Because sometimes I feel like I can barely get through the day
with my sanity in tact with two kids, but if God granted me such a rare gift, I
will take it graciously and do my best. If He saw me fit, one in ten thousand to
handle this, then I can. I had been overwhelmed at the thought of having one
more regular old baby who I would push out, take home a day later with me, and
now I was having TWO babies, a high risk pregnancy, potential hospital bedrest
(which is now definite bedrest) which will mean leaving my husband and 2 small
children for 2 months and all the planning that goes with that, a C-section, and
preemies who I will not even be able to hold for a few days and who will spend
weeks in the NICU. If only I could go back and smack the me that was overwhelmed
at the thought of one more! Somehow though, this all seems a little more
special, and much more of a blessing. Onto why this blessing, also comes with
huge risk, why we need so much prayer, and why they are truly miracles. WHAT ARE
MOMO TWINS?:
One in one hundred are the
odds of a woman becoming pregnant with twins. One in TEN THOUSAND are the odds
of a woman becoming pregnant with mono mono twins. S0, say our Good Lord lines
up 10,000 women. Then, He says, "Heather Petersheim! Step forward!" I look up
and down the row of women, unable to see in either direction where they end, and
no other woman stands forward with me. I am alone but somehow know I am blessed
and that I was chosen just for this, and through this I will be used in some
way. That's how I'm choosing to look at it, because the odds for these babies
are not so good.
Mono mono twins have a 50-60%
mortality rate, and that is the first thing that is scary about all of this. I
will explain the reasons why; it's pretty scientific but I'll try to make it
simple, bear with me this is the boring part.
Fraternal twins, who are in
completely different chorionic and amniotic sacs, may be different genders and
may look completely different. They happen when two eggs are fertilized and two
placentas, one for each baby is formed. Identical twins happen later in the
fertilization cycle. All identical twins share a chorionic sac and a placenta,
and are always the same sex with the same color eyes and hair because they come
from one sperm and one egg that splits late, so they share the same DNA and that
is why they look alike. BUT, 98% of identical twins have separate amniotic sacs
within the chorionic sac. These identical twins are called mono di, and almost
all identical twins are mono di. Rarely, there will be a thin membrane
separating the identical twins, but even more rarely - and in our case (mono
mono) twins, there is absolutely nothing separating these babies from each
other. This means that as they grow and move all around in the womb, their
umbilical cords twist, tangle, knot, and compress. Not only do they share one
placenta that they depend on for their nutritional needs and oxygen, but their
cords will entangle and compress which will cut off nutriets and oxygen. This
kills one or usually both babies 50-60% of the time without aggressive medical
interventions. This is why we were praying that a membrane would be found
separating them, but there just is not one. The good news is they were not
conjoined...one day in the fertilization process can stand between momo twins
and conjoined twins.
What this means since we have no
membrane separating our babies, is that until viability outside the womb at 24
weeks, it is a watch and wait game. Mono Mono babies are usually as healthy as
any other baby, but as the cords tangle and compress with each days new acrobats
in there, the risk grows. This is why once I reach 24 weeks, I will be admitted
to the hospital on bedrest and 24/7 monitoring for 8 weeks. They will perform
Non Stress Tests multiple times a day to check the babies' heartrates, and if
they find that one or both is in stress, they will perform an immediate
emergency C-Section to get the babies out. I will get ultrasounds weekly to
watch the cord entaglement and the growth of the babies. Although there is not
much research on Momo twins because they are so rare, the research that is out
there proves that when a mother is admitted for monitoring at 24 weeks and the
babies are born via C-Section at 32 weeks, they then have a 85-90% survival
rate, which is HUGE compared to the 40-50% survival rate without aggressive
care. I'll take the aggressive care please. This means I have 11 weeks left
before I become a prisoner of a tiny hospital room! Then, hopefully we can make
it safely to 32 weeks, when I will get a C-Section and the babies will spend a
few weeks in the NICU.
There are lots of other concerns
with twin pregnancies in general, which is why they are all considered "high
risk", but the other main concern with identical twins is called Twin to Twin
Transfusion Syndrome. This happens in 20% of identical twin pregnancies, not
just momo pregnancies. Because identical twins share a placenta, the blood flows
through both cords and both babies. With TTTS, one baby, the "donor's" blood
flows through them into the other baby, "the recipient" in surplus. One baby
gets all the oxygen and nutrients and blood. You would think this means that
baby is super healthy, but not so. With TTTS, usually both babies die, one from
anemia and the other from heart and brain problems. So we also are praying that
the babies do not develop TTTS which can happen at any time. Occasionally when
this or Inrauterine Growth Restriction, another problem, happen then one baby
dies and one lives. Sometimes you are recommended to terminate a baby who will
most likely not make it and is risking the other's life. This is a decision I do
not want to face.
Beyond all this, I was diagnosed
with a stomach condition the same day I found out I was having twins, and
it causes me a lot of severe pain and the diet that helps with the pain is not
the healthiest diet for twins in utero. More on that another
time...
Well
that is long enough my friends. Now you know way more about this whole scenario
than necessary but if you care, thanks for caring :) I will try to blog every
few weeks with updates. THANK YOU for your prayers and encouragement and support
and thoughts!
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